Patient Representatives

Dear Sir or Madam,

As host of this multidisciplinary gathering, we consider it paramount to also open the stage to patients and patient organisations. One of our Plenary Sessions, “Reality meets genetics”, is exclusively dedicated to patient-oriented topics, such as challenges and opportunities of rare diseases, patient-centered outcomes, living with a chronic disease, and advances in individualised treatments.

SSIEM 2022 provides a platform for national and international patient organisations to connect with each other, to discuss current challenges e.g. in the field of treatment development, and to join forces. In order to realize this, we have organized a side meeting for patients and patient representatives, which will take place on August 31st. We have also invited a member of EURODIS, the head organisation for rare diseases in Europe.

As we especially like to welcome patients and patient representatives, special conference rates are offered. The “patient centered” day is Wednesday, therefore attendance on this day is free of charge for patients and patient representatives. We dearly hope to count with your participation in this conference.

Please feel free to contact us if you need additional information.

We look forward to meeting you in Freiburg!

With kindest regards,
Ute Spiekerkötter